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Newsletter - November 2017 

 
 

First version of the Clinical Patient Management System (CPMS) 

The Clinical Patient Management System (CPMS) is the official ERN patient management tool, critical for Patient care, diagnosis and treatment, allow Virtual meetings to discuss and prepare outcome. On 20th November of 2017 the European Commission - DG Santé has launched the first version of the CPMS platform to include the first real cases to be treated. 

The 1st CPMS version is part of a pilot phase that will be an important part of the roll-out plan.  This phase will last until end of February 2018. It is an opportunity for users to gain experience in the system with real clinical data and with real consultations.

In this phase all ERNs are invited to enrol patients in order to have a meaningful experience with the system. Transplantchild through the Healthcare working group will be part of this phase, providing a real case, and evaluating the virtual consultation process through the available tools of the CPMS platform.

The TransplantChild Team
 
ERN Activities

TRANSPLANTCHILD Short-term Secondees Programme for Best Practices in Pediatric Transplantation 2017-2018

ERN TransplantChild awards Travel Grants to Medical Specialists and Specialist Trainee who are currently dedicated to paediatric transplantation and wish to pursue a Short-term training stay in any of the 18 health care providers (HCPs) members of TransplantChild.
 

Purpose

  • To learn clearly-defined methods, techniques, treatment application, … useful for the research or work at home by visiting another center.
  • To improve the knowledge and practice in paediatric transplantation under the scope of TransplantChild

The grant

TransplantChild will award three (3) grants for short-term visits of up to one month. The grants contribute towards travel costs and subsistence with 2300 Euros per grant.
 

Timing

  • Short-Term Secondees are intended for visits of 1 month.
  • Applications should be submitted before the 8th December 2017 at 17:00 (CET).
  • The list of selected candidates will be published in transplantchild.com by the 22nd of December 2017.
  • The planned date for start will be not later than 15th February 2018.

 
Short Term Secondees - More Information
 

Minutes BoN 27-28 October 2017- Madrid
 

Find below the Minutes of the last TransplantChild Board of the Network in Madrid: 

 

Download Minutes BoN 27-28 Oct 2017
News

CPMS platform: Most common queries

To facilitate the first steps in the CPMS platform, the following questions have been collected:


How do I log in?
If you do not have a user account, click on https://cpms.ern-net.eu and from there below the large blue button labelled 'Login via EU Login use the following links to authenticate your credentials and to request access (how to documents attached):

If you do have a user account, click on https://cpms.ern-net.eu and from there click on the large blue button labelled 'Login via EU Login' and enter your EU Login username and password.

Can I upload data directly from my hospital records?

Yes.  There is file, IHE and FTP upload available under the Medical Documents section of the data form.

If your hospital is IHE compliant, please send an email to This email address is being protected from spambots. You need JavaScript enabled to view it. with details of the technical person and we will assist you to set up the CPMS compatible profiles on your servers and run a test with CPMS.  There are four IHE profiles available in CPMS, XCPD Patient Discovery (ITI-55), Retrieve Folder List (ITI-38); Retrieve Document List (ITI-38) and Retrieve Document Set (ITI-39).

What if my hospital/treatment centre is a member of an ERN but is not in the list?

In this event, please send a mail to This email address is being protected from spambots. You need JavaScript enabled to view it. providing the details of the HCP (code, name) and the ERN Service Directory will be verified updated as necessary.
Available Quickguides: 

How to create an EU Login:
https://webgate.ec.europa.eu/ern/document/download/5513 

How to request Authorisation to use CPMS platform:
https://webgate.ec.europa.eu/ern/document/download/5512 

 
 
Upcoming Events
06-07 DECEMBER 2017

RD-Action: Workshop on clinical practice guidelines

6-7th December of 2017 - Rome, Italy
07-10 MARCH 2018
RE(ACT) Congress: International Congress On Research Of Rare And Orphan Diseases
Bologna, Italy
14-16 MARCH 2018
21st BTS Annual Congress
From 14th to 16th March 2018 (Brighton, UK)
18-21 MARCH 2018
44th Annual Meeting of the European Society for Blood and Marrow Transplantation
18th to 21st March 2018 (Lisbon, Portugal)
10-12 MAY 2018
European Conference on Rare Diseases and Orphan Products
From 10th to 12th May 2018 (Messe Wien Congress Center, Vienna, Austria.)
23-26 MAY 2018
International Liver Transplantation Society (ILTS) Anual Congress
From 23rd to 26th May 2018 (Lisbon, Portugal)
30 JUN-05 JUL 2018
27th International Congress of The Transplantation Society
From 30th June to 5th July 2018 (Madrid, Spain)
 

www.transplantchild.com
TRANSPLANTCHILD - European Reference Network on Pediatric Transplantation
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